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October 7, 2021 - Quarterly Business Meeting by videoconference

12:00 PM – 4:00 PM, EST

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12:00 – 12:05 PM Welcome and Call to Order

  • Roll Call
  • Acceptance of Agenda
  • July minutes 

VOTE 1 – Acceptance of the meeting agenda 
VOTE 2 – Acceptance of the draft minutes of the July 22, 2021 Council Meeting

12:05 PM – 12:50 PM Policy Project Updates, FY22

  • Presentation and Q&A:
    • IDD Medicaid-Dental Reimbursement Project


  • Dr. Heather Koball, Co-Director, National Center for Children in Poverty, Bank Street Graduate School of Education, New York City
  • Suma Setty, Senior Research Associate and Project Director, National Center for Children in Poverty
  • Chelsea Fosse, Dentist; Senior Health Policy Analyst, Health Policy Institute (HPI), American Dental Association
  • Updates:
    • HCBS project / congregate settings
    • 2021 Progress Report (COVID–19)
    • Disparate Treatment of Puerto Rican Residents with Disabilities Report
    • State Use of QALYs Project
    • Employee Misclassification Project
    • Voting Rights Project
    • Employment Program Inventory 
    • 2022 Progress Report (Climate Change)

12:50 – 1:00 PM Chairman’s Report

1:00 – 1:10 PM Executive Director Report

1:10 – 1:30 PM Executive Committee Report

  • Governance Representative Report 
  • Finance Representative Report
    • FY21 status of funds
    • FY22 budget proposal
    • Presentation of FY23 budget

VOTE 3 – Approve the spend plan as of August 31, 2021

VOTE 4 – Acceptance of financial report on status of funds (August 31, 2021)

VOTE 5 – Approve the proposed FY22 Budget

VOTE 6 – Acceptance of policy project budget allocation as follows: $100,000 for Medicaid reimbursement follow-up report, focusing on data; $100,000 for employee misclassification / tax policy project; $185,000 for 2022 progress report on the impact of extreme weather events on people with disabilities

1:30 – 2:05 PM State Advocacy Highlight: Roads to Freedom Center forIndependent Living of North Central Pennsylvania


  • Misty Deon, CEO, Roads to Freedom Center for
    Independent Living of North Central Pennsylvania
  • Marcie Roth, Executive Director and CEO, World Institute on Disability
  • Shaylin Sluzalis, Co-Executive Director of The Partnership for Inclusive Disaster Strategies
  • Germán Parodi, Co-Executive Director of The Partnership for Inclusive Disaster Strategies
  • Ebony Payne

2:05 – 2:40 PM Updates on Themes Projects

  • Health Equity / Medically Underserved Population Designation & Disability Cultural Competency Curriculum 
  • Use of Quality-Adjusted Life Years (QALYs) as a Barrier to Health Care Access 
  • Rationing and Denying Health Care to People with Disabilities 
  • Medicaid Portability   
  • Fostering Job Growth for People with Disabilities through the Small Business Administration 8(a) Business Development Program  
  • Pursuing Better Data and Federal Guidance Regarding Sexual Assault of Students with Disabilities

2:40 – 3:00 PM Legislative and Public Affairs Report Out

  • National Down Syndrome Society CEO Summit, Neil Romano
  • Computer/Electronic Accommodations Program (CAP) Virtual Joint Disability and Reasonable Accommodations Summit, David D’Arcangelo
  • Legislative and Public Affairs staff report

3:00 – 3:30 PM Public Comment 

Via “Hand Raise” on Zoom; Review of Written Submissions

3:30 – 4:00 PM NCD Training for Council Members on Special Government Employee Pay Policy

4:00 PM Adjourn 

VOTE 7 – Adjourn

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